{"id":309674,"date":"2025-06-15T00:24:01","date_gmt":"2025-06-15T04:24:01","guid":{"rendered":"https:\/\/www.eldiario.net\/portal\/?p=309674"},"modified":"2025-06-14T15:24:55","modified_gmt":"2025-06-14T19:24:55","slug":"que-es-el-xerodermia-pigmentosa","status":"publish","type":"post","link":"https:\/\/www.eldiario.net\/portal\/2025\/06\/15\/que-es-el-xerodermia-pigmentosa\/","title":{"rendered":"\u00bfQUE ES EL XERODERMIA PIGMENTOSA?"},"content":{"rendered":"

Lic. Lupe Fern\u00e1ndez Calix – Enfermera U.M.S.A.<\/p>\n

Es una enfermedad poco frecuente hereditaria de la piel \u00a0\u00a0transmitida de padres a hijos \u00a0\u00a0esta patolog\u00eda se caracteriza por la existencia de la sensibilidad extrema a luz solar afectando a la piel y a el tejido que cubre el ojo. La luz ultravioleta (UV)y la luz solar da\u00f1a el material \u00a0gen\u00e9tico (ADN) la piel se vuelva muy delgada y se observa la aparici\u00f3n de manchas o coloraci\u00f3n moteada por tan \u00a0solo ser \u00a0expuesta unos minutos a los \u00a0rayos solares y UV ,de forma\u00a0 inmediata \u00a0se \u00a0observa la \u00a0\u00a0aparici\u00f3n de pecas, sequedad tambi\u00e9n existe casos con ampollas\u00a0 algunas con \u00a0supuraci\u00f3n (presencia de pus) en el \u00e1rea, existe a su ves perdida de la audici\u00f3n, retraso en el crecimiento, cataratas ,convulsiones y c\u00e1nceres cerebrales y C\u00e1ncer de Piel.<\/p>\n

\u00bfSIGNOS Y SINTOMAS? <\/strong><\/p>\n

Ojo seco<\/p>\n

\u00dalceras en c\u00f3rnea<\/p>\n

Hinchaz\u00f3n en p\u00e1rpados<\/p>\n

C\u00e1ncer de c\u00f3rnea o en p\u00e1rpados<\/p>\n

Ampollas en la piel (una ves expuesta al sol)<\/p>\n

Parches de piel decolorada provocando envejecimiento prematuro<\/p>\n

Formaci\u00f3n de costras.<\/p>\n

Descamaci\u00f3n de piel.<\/p>\n

La superficie de la piel supura.<\/p>\n

Fotofobia (molestia a la luz)<\/p>\n

C\u00e1ncer de piel.<\/p>\n

\u00bfCOMO ALIVIAR LOS S\u00cdNTOMAS?<\/strong><\/p>\n

Apoyo Psicol\u00f3gico.<\/p>\n

Uso de lentes, gorros o sombreros que cubra la cabeza por detr\u00e1s de la nuca, paraguas.<\/p>\n

Llevar una pantalla protectora que cubra la cara<\/p>\n

Uso de ropa de camisa y pantalones mangas largas y calzados cerrados.<\/p>\n

Controles estrictos de ni\u00f1os sano en Centros de Salud.<\/p>\n

Aplicaci\u00f3n de protector solar (con consentimiento dermatol\u00f3gico) aplicarse dos o tres veces al d\u00eda<\/p>\n

No a la automedicaci\u00f3n.<\/p>\n

Utilizaci\u00f3n de autom\u00f3viles con vidrios de protecci\u00f3n ultravioleta<\/p>\n

No exponerse a la luz solar.<\/p>\n

En la actualidad el aumento de casos de esta enfermedad a nivel mundial como en pel\u00edculas personas que solo pueden disfrutar de la naturaleza solo con una vida nocturna que afecta psicol\u00f3gicamente a ni\u00f1os, j\u00f3venes \u00a0\u00a0es importante el apoyo familiar y la aceptaci\u00f3n del entorno social cada vez m\u00e1s amplia hace que el ni\u00f1o que la padece pueda desarrollar una vida cotidiana normal.<\/p>\n

\u201cVALORA Y APRECIA TU SALUD TODOS LOS D\u00cdAS\u201d<\/strong><\/p>\n

\u00a0<\/strong><\/p>\n

\u00a0<\/strong><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

Lic. Lupe Fern\u00e1ndez Calix – Enfermera U.M.S.A. Es una enfermedad poco frecuente hereditaria de la piel \u00a0\u00a0transmitida de padres a hijos \u00a0\u00a0esta patolog\u00eda se caracteriza por la existencia de la sensibilidad extrema a luz solar afectando a la piel y a el tejido que cubre el ojo. La luz ultravioleta (UV)y la luz solar da\u00f1a […]<\/p>\n","protected":false},"author":1,"featured_media":309675,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[52],"tags":[],"class_list":["post-309674","post","type-post","status-publish","format-standard","has-post-thumbnail","category-de-salud-mas-vida"],"acf":{"antetitulo":""},"yoast_head":"\n\u00bfQUE ES EL XERODERMIA PIGMENTOSA? - El Diario - Bolivia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.eldiario.net\/portal\/2025\/06\/15\/que-es-el-xerodermia-pigmentosa\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00bfQUE ES EL XERODERMIA PIGMENTOSA? - El Diario - Bolivia\" \/>\n<meta property=\"og:description\" content=\"Lic. 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